Tags: cancer, complete, details, diagnosed, drug, drugs, ear, health, medications, nose, proloid, provide, reliable, return, sister, situation, throat, thyroid, writing
The return of a reliable thyroid drug called "Proloid" is what we need !
I am writing this letter to provide details of my sister's health situation. She was diagnosed with thyroid cancer and had her complete thyroid removed in 1989. Since that time she has experienced problems with the thyroid replacement therapies perscribed to her. Eventually she tried a replacement called "Proloid" manufactured by Parke/Davis,PfizerWarner/Lambert. She immediately responded to Proloid and was doing great during the time she was taking this replacement. We did not know, however, that this drug was in the process of being discontinued in it manufacture. We have exhausted all avenues to obtain any remaining supply of Proloid that we could in order to maintain her health. Subsequently, she has tried every remaining therapy on the market both synthetic and natural variaties. These include Synthroid, Levothyroxine and Armour to name just a few.
All therapies with the exception of "Proloid" have produced very serious side effects with her. The main active ingrediant of Proloid is "Lyophilized Porcine Thyroglobulin". It is not to be confused with "dessicated or raw natural thyroid compounds". Apparently the process of lyophilizing the whole thyroid gland seems to be what made "Proloid" different from other therapies. My sisters health has deteriorated very badly as a result of not being able to find a thyroid replacement therapy that her body accepts. We do not feel that she is experiencing an allergic reaction to these other drugs, but for some reason her body is not accepting or absorbing them. These reactions are quite severe and include extreme head pain and pressure, muscle weakness and fatigue, nausea, loss of balance, dizziness, inability to concentrate, weight gain etc...... These symptoms are always present whether she is on or off the drugs. However, when she takes a thyroid compound she will experience these symptoms even stronger. She is dying with the drugs...............and she is dying without them.
Thyroid replacement therapies are distiquished into three catagories:
1. Synthetic (eg. Synthroid, Levothyroxin)
2. Dessicated Thyroid ( eg. Armour )
3. Porcine Thyroglobulin (eg. Proloid)
Only Proloid made up the third catagory of therapies available. Now that choice no longer exists as an alternative for patients to try. It is a fact that not all people are able to absorb the same medication in the same way, thus more choices need to be made available to meet the needs of different individuals.
Perhaps the answer to many of the problems relating to thyroid medications would be eleviated by the return of an "old" but reliable therapy called Proloid.
Perhaps we should be contacting the drug company Parke/Davis and Pfizer and demand a return of the drug "Proloid" to the market.
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- 7 Comments
- It was discontinued in the US and Canada for potency problems and poor sales, I believe. In other words it wasn't truly reliable. That isnt' to say that it wasn't the med of choice for some people, just that it was not of stable potency, and sales were low enough that it wasn't worth trying to reformulate it so that it would be stable enough.
Proloid is still available in Mexico, the last I heard, though. Perhaps you can order it from a pharmacy there? It may take some searching to find it, that way, but considering the circumstances, it might be worth it.
[This message has been edited by Meep (edited 09-03-2003).]#1; Sat, 15 Dec 2007 14:06:00 GMT
- The thyroid medication that is avaliable in Mexico, that goes by the name of Proloid 1, is NOT the same formula as the first and original drug put out by Parke-Davis for 40 years named "PROLOID"- thyroglobulin (porcine). It is the ONLY one, for what ever reason, that my body is able to absorb.
After having tried every avaliable thyroid replacement, my physician in 94' suggested "PROLOID" for me, as his patience always did very well on it. By the end of 94' it was discontinued and the market was taken over by the synthetic and dessicated varieties of thyroid hormone drugs.
I do believe this drug should be brought back and people be allowed to try using it, as not everyone is able to take the ones that are avaliable now.
[This message has been edited by Coastie (edited 09-16-2003).]#2; Sat, 15 Dec 2007 14:07:00 GMT
- thyroglobulin is the name of the bound thyroid hormone protein we talk about. This is what the thyroid normally produces. This is the Proloid you're talking about. The catch is the thyroid takes this thyroglobulin in to break it apart when the thyroid hormones are needed, and if you're thyroid isn't producing enough thyroglobulin, then it isn't going to do too well breaking it apart necessarily...#3; Sat, 15 Dec 2007 14:08:00 GMT
- I agree very much with "wonderface".
More options should be avaliable for people on thyroid drugs. There are far too many sick people out there.#4; Sat, 15 Dec 2007 14:09:00 GMT
- My mother is in the same situation as your sister. Were you ever able to find any help with Proloid?#5; Sat, 15 Dec 2007 14:10:00 GMT
- One of my dearest friends was in the same boat. She went through hell backwards to get her proloid. Then, she couldn't get it anymore and was forced to try something different. She passed away two years ago, at the age of 62. Much of her time, money and resources were spent in trying to get her proloid. I've often wondered if the fact she couldn't get her proloid caused her early death.
I miss her a lot. She is the one who convinced me that my problems were thyroid, even though 19 docs over 15 years missed it! I believe she used to operate a website devoted to helping people with thyroid problems obtain proloid.#6; Sat, 15 Dec 2007 14:11:00 GMT
- Can someone tell me what the difference is between this and armour...#7; Sat, 15 Dec 2007 14:12:00 GMT